Comments on: The MS Symptom Nobody Told You About

By: Karen

Karen — Thu, 17 Feb 2011 03:39:57 +0000

hey yerti. i often relate the moment when you realize you know more than your doctor to the moment when you realize you know more than your parents. it’s a bittersweet experience there’s no turning back from. both terrifying and deeply liberating.

By: Yerti Nelson

Yerti Nelson — Thu, 17 Feb 2011 02:43:14 +0000

You have to be your own doctor and read as much as youi can about MS and your symptoms I have truly given up on the the many doctors I have had since diagnosed 1994. When I read something and asked about it I realized I knew more than my doctor! I am from Sweden and there I heard about a MS doctor who was very sucsessful treating MS patients. She did so with NEUROTRANSMITTERS. When I Inquired about that to my us doctors NO ONE knew anything about that The other day I read about a neurotransmitter ( with a long funny name i cannot remember) They had found in research that a lack of that could have something to do with M S ??????

By: Frank Bush

Frank Bush — Fri, 18 Jun 2010 19:06:09 +0000

A very refreshing article which (to me) indicates a possible new approach to MS. In the past two years I’ve been through two neurologists. Both said ,almost identically, “You have MS and there’s nothing I can do for you. You don’t need to come back”.

My internest has helped more with my MS than any of the neurologists. did.

By: Karen

Karen — Tue, 19 Jan 2010 18:37:21 +0000

hi sarah. thank you for taking the time to comment! i checked out your blog and bookmarked it. your positive attitude is awesome and refreshing. right on!

By: Sarah Ellis

Sarah Ellis — Sun, 17 Jan 2010 17:46:52 +0000

Very well written and extremely informative. I guess this is something that I’ve always known but haven’t fully processed.

I was diagnosed with MS on October 29, 2009 after going through one crappy neuro and finally finding one who took the time to listen. The first neuro sent me to a particular place to have my MRI done and then 3 weeks later, at an appointment to get my MRI results, she tells me she was unable to view her scans on her equipment. WTF!

It’s unfortunate how many stories there are like ours. Thank you for posting your story and telling it like it is when it comes to (some) of these greedy docs.

By: Julie Kirk

Julie Kirk — Sat, 16 Jan 2010 19:12:16 +0000

I really need to change drs but my records file weighs about 10 lbs. And I’m not able to drive now either.