Comments on: Taking Control of Multiple Sclerosis

By: Larry Meehan

Larry Meehan — Mon, 15 Aug 2011 17:02:06 +0000

Louis,

Thanks for bringing up LDN (Low Dose naltrexone). While Prof. Jelinek has done a fine job with his book, he has still chosen to “play it safe” by leaving out LDN. LDN is currently in the state that so many remedies spend years in before they are finally accepted. In the meantime, you can expect doctors and others to act as if there is nothing to it until the evidence is so huge they find themselves looking silly in opposing it. During this time, countless patients will suffer needlessly. Not accepting “anecdotal evidence” means calling hundreds or thousands of sincere patients liars or fools.

By: Sue Dosen

Sue Dosen — Sun, 05 Jun 2011 04:19:14 +0000

I so believe that ms can and must be overcome. I remembereeadingJelunek way back-was impressed then and will reorder the book now! I believe in the power of positive thinking, appropriate diets, exercise, support, and faith!

By: Karen

Karen — Sun, 05 Sep 2010 16:35:51 +0000

Hi Donna. Thanks for writing. I recommend checking out the interview I just did with Prof. George Jelinek – it’s very inspirational and informative and outlines his program for getting well. You can check out the excerpt I just published from it in my latest blog post. I highly recommend this for you specifically because it discusses the efficacy of the drugs. You can check out his website at http://www.overcomingmultiplesclerosis.org. I also suggest setting up an appointment with Ann Boroch. She’s amazing and will give you a diet and supplement regimen that will help tremendously. Her website is http://www.annboroch.com. I hope this helps. Don’t hesitate to write if you have more questions!

Wishing you the best,
Karen

By: Donna

Donna — Sun, 05 Sep 2010 15:59:04 +0000

karen, I was diagnosed in 2008, but first started showing symptoms in 2006. I’ve been on meds since diagnosis. Have not gotten this disease under control. Had four flares last year with my biggest one in February of this year. Have not been back to work since because it’s not been safe for me to do so. I’m frustrated… many medication changes. kg wrote about how she has been under control with diet and supplements. Where can I find out more about this. There’s too much information on the internet, much of which is conflicting and I’m lost trying to understand. Can you direct me here? Appreciate any help. Thanks.

By: Louis

Louis — Thu, 08 Apr 2010 10:44:52 +0000

Hello Good People:
Myelin will repair itself. My wife was diagnosed with MS in 1976 and is now 65. She is Secondary Progressive, whatever that means, I think the categories are meaningless fantasies of neurologists who think they can write. Maybe fiction. Four months ago she was experiencing dementia, and could not move her right leg. She is now walking 40 feet to the bathroomn with her hands being held, and she is starting to use a walker. In six months she will be walking with me at beach. I’m 85 and had four back surgeries, and I am now walking hills. Here’s the cure for M.S.: l. LDN 2. Swank or Jelinek diet. 3. Heavy Vitamin D 4. Other nutritionals. 5 exercise 6. Mental and emotional healing from friendship, love, psychotherapy, or whatever – they all substantially give all persons the emotional support we need 7. The Zamboni procedure. Isabel is 90% blocked in right jugular, very defective in left. Example of Isabel’s recovery from dementia: remembering San Francisco Giant’s lineup better than me, and a somewhat sharp wit directed at a few of my defects. Myelin repair will take place over time with good blood supply, I have seen a study that suggests this can significantly occur within nine months, I can’t remember all the studies I’ve read. The Interferons do more harm than good and studies indicate anti-bodies do damage for up to fifty-nine months after cessastion. When I took Isabel off Avonex her neuro was crestfallen. I think he’s a genuine guy, but sometimes I think he is too concerned with retirement funds from I know not where. Good blood supply is essential, and I have argued with wanting Isabel to have Niacin intake to reduce HDL’s, so we have compromised with small amount. I believe I have connected a lot of dots. We are in the STanford Zamboni proedure and the neuros at UCSF and even Stanford itself is fighting this. Sell your Biogen and Bayer stock. I hope I have helped, I have a passion for this and would like to spread the word to others. I’m personally strong as a horse at 85 and run my motel business in Central California and other properties. You don’t do well in an economic downturn if you don’t have common sense -oops, here comes an Isabel needle. Anyone can call me, I’m in the Santa Cruz, Ca. phone book.
Best wishes and hope to all
Louis Bartfield

By: Karen

Karen — Wed, 24 Mar 2010 12:40:44 +0000

I relate quite a lot to Laura’s post. I was symptom free for 15 years after my first symptoms, then had a very disabling attack and have been gradually deteriorating since then.

I do think it’s a good idea to try everything you can so I’ve been following a strict diet (minimum sat fats, lots of fish, veg and fruit etc etc)and taking supplements (eg vit D, vit B complex, fish oil, flax oil and a few others!).

I’ve recently started meditating to maybe that will help my state of mind eventually.

Maybe, just maybe, this will slow down the progression of the illness but I can’t see how the damaged myelin can repair itself. Maybe much of the information out there on the internet and through books like that of Dr. Jelinek will help the newly diagnosed but I tend to think that, for those of us who have suffered considerable damage to our myelin, there is no hope of actually getting better.

So, very good luck to all you younger people who are starting out on this journey but I think it may be too late for the likes of me and that is where I think I am relating to Laura’s post.

Very Best Wishes,

Karen

By: Colin Farrell

Colin Farrell — Tue, 16 Mar 2010 11:55:14 +0000

I have had Relapsong Remitting MS since 1997 and discovered Prof Jelinek in 2006 – this has been the most important discovery in my life. His book should be given to each and every patient diagnosed with MS as the evidence is simply and concisely presented for the lay person. No magic, no voodoo, no gimmicks – just good honest science.
If anyone deserves the Nobel prize – he does.

By: Louis Bartfield

Louis Bartfield — Sat, 13 Mar 2010 08:56:39 +0000

My wife was diagnosed with MS over thirty years ago. The internet is magical in finding new and useful information. A few months ago she was suffering significant dementia and inability to move her right leg. The internet helped me discover the uses of Vitamin D and other nutritionals, she is now on Low Dose Naltrexone (very important), and she enrolled in a Stanford study on CCSVI, aka the Liberation procedure developed by P. Zamboni in Italy, and which may be a new paradigm. Three months into the LDN she has begun to show improvement. Good luck to you all.
Very truly yours,

Louis Bartfield

By: Karen

Karen — Sat, 30 Jan 2010 02:20:06 +0000

hi laura. thank you for taking the time to comment. i agree and acknowledge of course that people can be symptom free for periods of time and then have relapses, absolutely. that is the definition of relapsing-remitting MS, which you obviously know. but i also believe that healing is absolutely possible. notice that i didn’t use the word “cure”, but certain lifestyle changes and emotional/psychological work can create the environment in the body for healing to take place and for symptoms to abate. the changes i’m talking about, however, take massive dedication and willpower – often a complete overhaul of a person’s life, inside and out. it’s a multi-faceted approach, not a magic bullet by any means, and it takes time.

that’s the first reason doctors are not using it. they don’t have the knowledge, it’s not a part of their training, it’s not being encouraged by the pharmaceutical reps that they’re in contact with, and it’s not particularly attractive to patients. most people are not willing to make the changes required to heal in this way.

another reason is that doctors are trained in western medicine, the basic tenet of which is that symptoms need to be suppressed with pharmaceutical drugs, without addressing the root cause of the illness. doctors are largely ignorant about the huge benefits and amazing impact of diet, and they are not trained in the use of supplements, nor the detoxification tools that are essential to anyone with MS (or any illness, for that matter). as far as the psychological aspect, thinking positive is great but for most people with MS, the change that needs to take place is deeper and usually requires addressing and resolving the thought patterns that have contributed to illness in the first place.

i am not anti-doctor and i think it’s really wonderful that you have a doctor that you trust that has served you well. i just understand that they are coming from a very specific school of thought with very specific training, and in the case of an illness like MS, i consider them to be one tool in a larger toolbox, not the only tool. i also don’t believe we have complete control of our bodies. i don’t believe in absolutes like that. i do believe that we can control the food and chemicals we expose ourselves to and the internal chemicals we bathe in as a result of our thoughts, and that these things either add to or subtract from our body’s ability to heal.

if you have any interest in discussing this further i’m happy to. i wish you well.

warmly,
karen

By: Laura

Laura — Sat, 30 Jan 2010 01:36:52 +0000

I disagree with many of your claims for several reasons. When I was first diagnosed it was mild. I wasn’t very worried about it, continued to work, was on a DMD, and went on with my life. My symptoms started to get worse, I stayed positive and kept working. I kept doing all I could, would not give into it but yet it got worse. I’m no longer able to work. I have an excellent doctor who has helped me a lot.
We do not have complete control of our bodies. If there was truly a cure then doctors would be using it and there wouldn’t be do many people living with it.
It’s commonly known that with MS you can remain symptom free for a very long time and appear to be “healed” when you really are not.