Comments on: MS is a Monster!

By: Tracy Young

Tracy Young — Sat, 06 Nov 2010 14:13:18 +0000

Dear Karen,
Great post. Yes MS can be a monster or it can be that thing that pushes you to find deep down inside yourself that hidden strength.
I find in my deepest moments of pain I reach down inside and grab that inner core, you know the one we all never realized we had. I take hold of the that and focus my attention on something besides feeling crappy, and then as if by some miraculous intervention I start to feeling a little better.

By: Wayne Stillerman

Wayne Stillerman — Thu, 09 Sep 2010 15:08:32 +0000

Karen, this was an awesome post. Fear is a terrible thing to have to live with. Whether you fear an event like a public speaking engagement, a financial crisis you may be going through or your overall health, fear can be paralyzing. Facing ones fear can be difficult at best. Although I wouldn’t wish MS on my worst enemy, MS has empowered me in many different ways. It’s made me a much more empathetic and compassionate person and someone who will always go above and beyond to someone less fortunate. There are others who suffer more than I do and so it helps me to put my life in perspective. I always remind myself to count my blessings. I have two wonderful kids, a wonderful fiance that loves me unconditionally and is extremely supportive and many awesome friends. Things could always be worse. At least MS isn’t a disease where going to die from. At least MS has a tight knit group of people that stick together and are my second family. Being positive is also beneficial to ones health and I make an effort to surround myself with positive people like myself. Yes, I believe my cup is at least half full if there is an MS monster, he is invisible to me. Thanks for sharing your views. I really enjoyed reading them.

By: Karen

Karen — Sun, 21 Mar 2010 01:39:12 +0000

Dee and Hopeful – thank you for taking the time to give some advice to Cesar. I hope it’s helpful.

By: Dee

Dee — Sun, 21 Mar 2010 01:02:01 +0000

Cesar, I also go through this and I do take my injections, in my case this is all part of having MS. But the headaches do pass eventually. What I do is apply homepathic magnets to any place where there is pain. I apply a headband and place the magnets exactly where the pain is at its worst. The magnets redirect the pain away from you and make the blood flow better. I also apply migraine medication (Head On) & rub on medication to my forehead or where I feel the pain while I have the magnets. Also ice packs help alot. After a short while the pain passes. It is not the end of the world believe me, I thought I was going to die alone from this.

By: hopeful

hopeful — Fri, 12 Mar 2010 01:06:17 +0000

Cesar,
I have compassion for your worry, and the headaches you are experiencing. Maybe you would benefit from contacting a local counseling office near you to talk over your concerns, and help make a plan for your future.

By: cesar rosario

cesar rosario — Wed, 10 Mar 2010 20:02:43 +0000

I like this I was dumb in stopping my injections 9 months ago but I just went to c my grandma in Puerto Rico 1week did not enjoy myself at all went with my mom stood in bed the whole time horible headaches I’m home now and I’m not prince charming but no woman wants to deal with my headaches and u say ms they think aids cause I lost alot of wate u. Look at me people think I’m 35 and I’m 43 but the way I feel right now I don’t if its better dead then alive!! My mom wants to move to p.r. then I’m left all alone what am I gonna do. I have been a wreck very sentamental crying all day for no reason .what would anybody advice me to do ? Email cesar8882@yahoo.com.9045360007 thank u

By: Pam

Pam — Wed, 10 Mar 2010 19:40:57 +0000

Yes, I think a lot of people feel that MS is a monster. And probably to those who are significantly disabled, it seems like a monster. I do feel bad for them. But I believe that EVERYONE, no matter what their situation is in life, can help themselves by eating healthy and nuturing foods, getting some exercise (even if is doing a video like “Yoga for MS” or “Tai Chi for Seniors” — or simply just stretching), and practicing some form of self-healing, like meditation. I believe that is how a person puts forth their best effort at dealing with the MS moster. I believe in the saying “I have MS — MS does not have me”!!!

By: Bri

Bri — Mon, 08 Mar 2010 02:06:13 +0000

great post! I choose to be the hero in my story. I went fishing with my husband today and he was insisting that when we climb down a rocky slope to the water that he take the supplies down first and then come back for me; well I told him that I didn’t need help, I’ve improved a lot and I am not gonna let myself get bad again. I know what to do and what not to do, I’ve learned a lot about my MS. Thanks for your blog, I feel I connect with a lot of things you talk about