MS Voices (or, I’m Mad as Hell)
George Jelinek, author of Overcoming Multiple Sclerosis, and the first guest in the MS Voices Interview Series
I’m mad as hell. Usually I go easy on doctors, because I truly believe they mean well. But this time, I need to rage. At least for the duration of this post.
A member of my extended family was just diagnosed with MS. His sister reached out to me, asking if I could speak with him. I wrote back and said of course and gave her my number so that he could call me. She replied, saying that he decided he didn’t want to call because he doesn’t think talking to anyone with MS will help.
Why? Because his doctor said he has a rare form. In other words, his case is worse. His case is more hopeless. What might help someone else with MS won’t help him, because for him, it’s different.
I don’t believe in taking hope away from people. Especially not in the name of wanting to protect someone from “getting their hopes up.” Upping your hope is one of the healthiest things you can do for yourself. It powers the engine of your will and it inspires you to operate from a position of possibility. Like this, you’re not looking for what won’t work. You’re looking for what could. Like this, you can begin the search for the information that will help you heal.
Tomorrow I am extremely excited to be contributing to your search for information with the launch of my nine-week interview series called MS Voices – my response to the doctor’s disempowering, hope-snatching doom and gloom. Every week for nine weeks I’ll be interviewing an expert in MS, health, and healing so that I can bring to you first-hand, expert opinions and cutting-edge information on Multiple Sclerosis and health directly to you, for free, so that you don’t have to spend years wasting your time on what doesn’t work and wading through the sea of voices to find the ones worth listening to.
I truly, deeply believe that there is always hope, and that no matter how “rare” or “severe” someone’s case is, there is never a time when one should stop searching for information that could help them get well. Last week I wrote about how my tip about the cheap and natural treatment for UTI’s, D-Mannose, saved my daughter’s friend from having to get a scalpel to her abdomen. Information is power. Information can change everything.
To get the detailed scoop about the MS Voices Interview Series and to sign up for FREE, click here. Tomorrow night we kick the series off at 9 PM EST with Professor George Jelinek, author of Overcoming Multiple Sclerosis (www.overcomingmultiplesclerosis.com). Will you be there? I hope so.
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sounds like my former neurologist
That is EXACTLY what I was told as well. There is no treatment for Primary progressive MS. We are totally margenalized and kicked to the curb. There is absolutely nothing for you. “I can give you methotrexate, but it won’t work” is a direct quote from my former neuro. Talk about giving the patient a feeling of total hopelessness.
Then I find that MANY neuros DO attempt to treat PPMS, with DM drugs, and numerous other meds as well, like Cellcept, methotrexate, IVIG, etc. Since they know so little about it, maybe they don’t really know what MIGHT work. Let’s see how the clincal trial of Fingolimod for treating PPMS comes out.