Author Archive

If you weren’t able to make it on the live call last Thursday (the first in the MS Voices Interview Series), below is an excerpt from my 1 hr and 27 minute interview with Prof. Jelinek. In the excerpt, he discusses the flaws in the scientific studies which “prove” the effectiveness of the interferon...
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I’m mad as hell. Usually I go easy on doctors, because I truly believe they mean well. But this time, I need to rage. At least for the duration of this post. A member of my extended family was just diagnosed with MS. His sister reached out to me, asking if I could speak...
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If you don’t know who the Wheelchair Kamikaze is, you should. He is Marc Stecker, one very funny and determined character who writes one hell of a high-quality blog on living with MS. He’ll be one of the featured guests in my upcoming interview series MS Voices, and as such I wanted to introduce...
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A couple days ago I ran into an acquaintance at the pool club. Her name is Rebecca and her daughter Carly was in the same group as my daughter in camp last summer. One day when we were waiting for our kids to get out of camp, she told me about Carly’s chronic Urinary...
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A couple nights ago, after weeping ceaselessly for many hours, I called my very dear and wonderful friend Kiela. When she answered the phone, I half-cried the word “hi” and continued weeping. We sat silently on the phone like this for some time. Then she said, “I think I like you better this way.”...
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It’s occurred to me, in the time and space since my post yesterday, that it may appear as if I believe I am a victim of the relationship I was involved in, and that I blame this relationship for perpetuating my illness. I do not. I am responsible for everything that occurs in my...
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I am walking to the river. I am walking to the river because my heart is broken and it keeps demanding that I be out in nature. I suppose because it’s closer to God out there, and nothing short of being embraced by the entire Universe could ease this. So I am walking to...
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Monday around 9:30 p.m., if you had walked into my house you would have found me sitting cross-legged on the floor, rocking back and forth, sobbing, heaving, and thrusting out deep, guttural, staccato sounds of agony. This is not what I typically do on a Monday evening. But something serendipitous is happening. Not fun,...
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I’m part of a mother’s circle. We meet once a week and talk about our lives. This week, one woman who I’ll call Rachel broke down in tears and began explaining that she was having a particularly difficult time. She feels unappreciated and overworked at her job and guilty because it prevents her from...
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Michael Brown was living a “blissfully unconscious” life as a music journalist when he fell in a crippled heap on the side of the road one day with his first attack of Horton’s Syndrome. For ten years he suffered this acutely painful and very rare neurological condition, which manifested as “multiple daily occurences of...
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