Comments for The Self-Healing Coach http://www.theselfhealingcoach.com Support & Inspiration to Heal Multiple Sclerosis Fri, 10 Sep 2010 17:45:59 +0000 hourly 1 http://wordpress.org/?v=3.0.1 Comment on MS Voices (or, I’m Mad as Hell) by Debbie http://www.theselfhealingcoach.com/2010/09/01/ms-voices/comment-page-1/#comment-932 Debbie Fri, 10 Sep 2010 17:45:59 +0000 http://www.theselfhealingcoach.com/?p=1826#comment-932 That is EXACTLY what I was told as well. There is no treatment for Primary progressive MS. We are totally margenalized and kicked to the curb. There is absolutely nothing for you. "I can give you methotrexate, but it won't work" is a direct quote from my former neuro. Talk about giving the patient a feeling of total hopelessness. Then I find that MANY neuros DO attempt to treat PPMS, with DM drugs, and numerous other meds as well, like Cellcept, methotrexate, IVIG, etc. Since they know so little about it, maybe they don't really know what MIGHT work. Let's see how the clincal trial of Fingolimod for treating PPMS comes out. That is EXACTLY what I was told as well. There is no treatment for Primary progressive MS. We are totally margenalized and kicked to the curb. There is absolutely nothing for you. “I can give you methotrexate, but it won’t work” is a direct quote from my former neuro. Talk about giving the patient a feeling of total hopelessness.

Then I find that MANY neuros DO attempt to treat PPMS, with DM drugs, and numerous other meds as well, like Cellcept, methotrexate, IVIG, etc. Since they know so little about it, maybe they don’t really know what MIGHT work. Let’s see how the clincal trial of Fingolimod for treating PPMS comes out.

]]> Comment on Karen Gordon Interviews Marc Stecker (AKA The Wheelchair Kamikaze) by Sue Dosen http://www.theselfhealingcoach.com/2010/09/09/karen-gordon-interviews-marc-stecker-aka-the-wheelchair-kamikaze/comment-page-1/#comment-928 Sue Dosen Fri, 10 Sep 2010 02:27:26 +0000 http://www.theselfhealingcoach.com/?p=1880#comment-928 I listened to most of the Kamakazi's presentation Nd I think the guy is a genius. Would love to enjoy a Kalazi ride. He is really moving forward! Love the energy! I listened to most of the Kamakazi’s presentation Nd I think the guy is a genius. Would love to enjoy a Kalazi ride. He is really moving forward! Love the energy!

]]> Comment on by Lisa Sheldon http://www.theselfhealingcoach.com/advancepurchthanx/comment-page-1/#comment-925 Lisa Sheldon Thu, 09 Sep 2010 21:41:41 +0000 http://www.theselfhealingcoach.com/#comment-925 I look forward to receiving the digital downloads. Wednesday is my Bible Study night. Now I can do both. Thank you! I look forward to receiving the digital downloads. Wednesday is my Bible Study night. Now I can do both. Thank you!

]]> Comment on What’s Wrong With This Picture? by Tiffany http://www.theselfhealingcoach.com/2010/03/10/whats-wrong-with-this-picture/comment-page-1/#comment-923 Tiffany Thu, 09 Sep 2010 18:01:24 +0000 http://www.theselfhealingcoach.com/?p=853#comment-923 I agree with Karen. I feel that this picture doesn't send a positive message. Initially, it triggers sadness that there is no hope for people with MS. However, I see/understand both sides of the message. This picture is one person's view of MS. Everyone is going to "expire" at some point...whether it be a complication with MS or something else. As humans, we have been given the gift of choice. We can choose to allow images, information & opinions skew our views or we can choose to decide for ourselves. Positivity is a great medicine...and I personally try very hard to stay positive, but some days are more challenging than others. I wish the best to all suffering from any kind of chronic illness. Hugs!! :) I agree with Karen. I feel that this picture doesn’t send a positive message. Initially, it triggers sadness that there is no hope for people with MS. However, I see/understand both sides of the message. This picture is one person’s view of MS. Everyone is going to “expire” at some point…whether it be a complication with MS or something else. As humans, we have been given the gift of choice. We can choose to allow images, information & opinions skew our views or we can choose to decide for ourselves. Positivity is a great medicine…and I personally try very hard to stay positive, but some days are more challenging than others. I wish the best to all suffering from any kind of chronic illness. Hugs!! :)

]]> Comment on MS is a Monster! by Wayne Stillerman http://www.theselfhealingcoach.com/2010/03/07/ms-is-a-monster/comment-page-1/#comment-921 Wayne Stillerman Thu, 09 Sep 2010 15:08:32 +0000 http://www.theselfhealingcoach.com/?p=825#comment-921 Karen, this was an awesome post. Fear is a terrible thing to have to live with. Whether you fear an event like a public speaking engagement, a financial crisis you may be going through or your overall health, fear can be paralyzing. Facing ones fear can be difficult at best. Although I wouldn't wish MS on my worst enemy, MS has empowered me in many different ways. It's made me a much more empathetic and compassionate person and someone who will always go above and beyond to someone less fortunate. There are others who suffer more than I do and so it helps me to put my life in perspective. I always remind myself to count my blessings. I have two wonderful kids, a wonderful fiance that loves me unconditionally and is extremely supportive and many awesome friends. Things could always be worse. At least MS isn't a disease where going to die from. At least MS has a tight knit group of people that stick together and are my second family. Being positive is also beneficial to ones health and I make an effort to surround myself with positive people like myself. Yes, I believe my cup is at least half full if there is an MS monster, he is invisible to me. Thanks for sharing your views. I really enjoyed reading them. Karen, this was an awesome post. Fear is a terrible thing to have to live with. Whether you fear an event like a public speaking engagement, a financial crisis you may be going through or your overall health, fear can be paralyzing. Facing ones fear can be difficult at best. Although I wouldn’t wish MS on my worst enemy, MS has empowered me in many different ways. It’s made me a much more empathetic and compassionate person and someone who will always go above and beyond to someone less fortunate. There are others who suffer more than I do and so it helps me to put my life in perspective. I always remind myself to count my blessings. I have two wonderful kids, a wonderful fiance that loves me unconditionally and is extremely supportive and many awesome friends. Things could always be worse. At least MS isn’t a disease where going to die from. At least MS has a tight knit group of people that stick together and are my second family. Being positive is also beneficial to ones health and I make an effort to surround myself with positive people like myself. Yes, I believe my cup is at least half full if there is an MS monster, he is invisible to me. Thanks for sharing your views. I really enjoyed reading them.

]]> Comment on What’s Wrong With This Picture? by Trish http://www.theselfhealingcoach.com/2010/03/10/whats-wrong-with-this-picture/comment-page-1/#comment-917 Trish Wed, 08 Sep 2010 00:51:11 +0000 http://www.theselfhealingcoach.com/?p=853#comment-917 Nothing's wrong with it..... I think the picture is beautiful and shows the reality of MS for many of us who have it. (and it IS called reality) I know many in wheelchairs who have 'pushed passed', 'pushed through', 'picked themselves up and brushed the dust off' repeatedly but as the years pass, it happens. To say this is "self-indulgent and self-pitying" not only seems strange to me but tells a bunch of us that we're failures. AHH, but I refuse to let your opinion muddy my 'self' worth. Defined by MS...what exactly does that mean? People with MS are the only group I've heard use this phrase, and to me, that's much worse than anything this picture implies. Defined... who would ever? Do you really think those of us in wheelchairs, looking to the bed next have 'defined' this or let it consume us? geesh... Nothing’s wrong with it….. I think the picture is beautiful and shows the reality of MS for many of us who have it. (and it IS called reality) I know many in wheelchairs who have ‘pushed passed’, ‘pushed through’, ‘picked themselves up and brushed the dust off’ repeatedly but as the years pass, it happens. To say this is “self-indulgent and self-pitying” not only seems strange to me but tells a bunch of us that we’re failures. AHH, but I refuse to let your opinion muddy my ‘self’ worth.

Defined by MS…what exactly does that mean? People with MS are the only group I’ve heard use this phrase, and to me, that’s much worse than anything this picture implies. Defined… who would ever? Do you really think those of us in wheelchairs, looking to the bed next have ‘defined’ this or let it consume us? geesh…

]]> Comment on Karen Gordon Interviews Prof. George Jelinek by Linda M http://www.theselfhealingcoach.com/2010/09/05/karen-gordon-interviews-prof-george-jelinek/comment-page-1/#comment-913 Linda M Sun, 05 Sep 2010 17:11:18 +0000 http://www.theselfhealingcoach.com/?p=1837#comment-913 Hi, I've just listened to Professor Jelinek's exerpt and what he says absolutely makes sense! I look forward to hearing the rest of the series. Hi, I’ve just listened to Professor Jelinek’s exerpt and what he says absolutely makes sense! I look forward to hearing the rest of the series.

]]> Comment on Taking Control of Multiple Sclerosis by Karen http://www.theselfhealingcoach.com/2010/01/27/taking-control-of-multiple-sclerosis/comment-page-1/#comment-912 Karen Sun, 05 Sep 2010 16:35:51 +0000 http://www.theselfhealingcoach.com/?p=464#comment-912 Hi Donna. Thanks for writing. I recommend checking out the interview I just did with Prof. George Jelinek - it's very inspirational and informative and outlines his program for getting well. You can check out the excerpt I just published from it in my latest blog post. I highly recommend this for you specifically because it discusses the efficacy of the drugs. You can check out his website at www.overcomingmultiplesclerosis.org. I also suggest setting up an appointment with Ann Boroch. She's amazing and will give you a diet and supplement regimen that will help tremendously. Her website is www.annboroch.com. I hope this helps. Don't hesitate to write if you have more questions! Wishing you the best, Karen Hi Donna. Thanks for writing. I recommend checking out the interview I just did with Prof. George Jelinek – it’s very inspirational and informative and outlines his program for getting well. You can check out the excerpt I just published from it in my latest blog post. I highly recommend this for you specifically because it discusses the efficacy of the drugs. You can check out his website at http://www.overcomingmultiplesclerosis.org. I also suggest setting up an appointment with Ann Boroch. She’s amazing and will give you a diet and supplement regimen that will help tremendously. Her website is http://www.annboroch.com. I hope this helps. Don’t hesitate to write if you have more questions!

Wishing you the best,
Karen

]]> Comment on by george http://www.theselfhealingcoach.com/msvoicesconfirmattend-2/comment-page-1/#comment-911 george Sun, 05 Sep 2010 16:19:13 +0000 http://www.theselfhealingcoach.com/#comment-911 what is so amazing about the kamikaze is how little he actually misses in life. The guy is so incredible. what is so amazing about the kamikaze is how little he actually misses in life. The guy is so incredible.

]]> Comment on by george http://www.theselfhealingcoach.com/msvoicesconfirmattend-2/comment-page-1/#comment-910 george Sun, 05 Sep 2010 16:01:00 +0000 http://www.theselfhealingcoach.com/#comment-910 Please ask the wheelchair Kamikaze the following question for me. Marc, if you had 100% full function for 24 hrs how would you spend the time? Tell him the question is from The Greek from The D. Please ask the wheelchair Kamikaze the following question for me. Marc, if you had 100% full function for 24 hrs how would you spend the time?
Tell him the question is from The Greek from The D.

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