I don’t receive emails from my ex-husband anymore. Not because he doesn’t send them, but because I’ve set up a filter so they go directly to SPAM. My SPAM folder has much more tolerance for toxicity than I do. But there are loopholes, like this past weekend when an email from my ex got through because he sent it through YouTube, with a link to a video called “Planning for a Life With MS” by the National MS Society. This is what he wrote: “This is very valuable for anyone with MS, but far...
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The Dream I just moved to a new rental on Friday. An adorable little house I’d been dreaming of every day for weeks. In my mind I knew what it looked like, what it felt like, the way the light would stream in, the kind of windows and floors it would have, where in town it would be located and on what kind of street, how much it would cost. I knew it would be an extremely rare find – one might even say my criteria was unreasonable given the reality of this town’s...
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The phrase “keep fighting” gets bandied about the MS community quite frequently. Fight the MS monster, fight your disease, don’t give up the fight. I understand how this can be empowering for some people, a cheerleading phrase of encouragement to keep on keepin’ on. However… You and your illness are not separate. Multiple Sclerosis is not your enemy. It is not a foreign invader, it’s a condition of dis-ease in your body. If you relate to MS as your adversary, then you are creating a context in which the thing to do is to...
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