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I am 9 years old. My nose is cold and so is the metal of the seat belt as I pull it across my chest. It’s 5:30, already dark, and my mom, my sister, and I are driving to McDonald’s for dinner. The McDonald’s is across the street from the Marlboro Motor Lodge, where we live, and it’s cheap, so we eat there most nights. We’ve been living at the motel for two weeks, ever since things got uncomfortable at her friend’s house, where we’d been staying in their semi-finished basement for the five...
It is the stories we carry that tell us who we are. It is our stories that tell us how to see the world. When we step onto the path of healing (whether it be with the goal of healing an illness or just trying to be a happier person), our stories are our greatest clues. The stories that live in our psyches, that come forth, asking to be acknowledged, are where our work begins. It’s important to ask ourselves why, of all the millions of events and memories we have experienced, are these...
That’s right, you heard me. I’ve got MS. And you should be so lucky to get a piece of this. That’s truly how I feel about the role my illness plays in how attractive I am as a romantic partner. I think it makes me more attractive. Not in the “ooh it’s so hot the way your legs are numb today” sorta way. More like, “wow, look at how you’ve absolutely f@#*cking refused to let your MS be anything but a tool to move you closer to becoming your most authentic, fully expressed self.”...
I was in San Francisco for a seminar when I was diagnosed with Multiple Sclerosis. The day after receiving the call, I remember riding across the Golden Gate Bridge on the bus back to the airport. I was still in shock, and felt like one might after a major breakup, or someone’s unexpected death – splayed, raw, hoping no one notices my exposed innards. I was sitting on the left side of the bus and staring out at the water when I had what I’ll call a vision (because it was not intentional like...
I hear many people refer to MS as a monster, a mysterious entity that they have no control over, an evil creature who comes to attack them at will. Is this a bad story to be telling yourself? That depends. There are two ways to be in this story of the MS monster: one of them is useful, the other is not. If you’re the hero on your journey, the myth of the monster is a central and very important element of your story. The monster is your challenge, and in order to receive...
What were the stories that your parents and family told about you when you were young? What’s the very first story you can remember? Now, how did those stories make you feel about who you were in the world and what your life was about? Your Personal Mythology Everyone has a story about their life. It was informed when you were young by your family, and as you grew, you continued to create this story for yourself based on the experiences you had in the world. This story or stories (let’s call it your...
