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My desktop computer’s mouse is not functioning properly and each time I use it, I feel a mounting rage inside me. I want to pull it out and throw it at the wall with all the force of my being. I feel, for this inatimate object, an unrivaled hatred. I click once and it thinks I clicked twice, opening files and programs I am not intending to open. I try to move my cursor to a word and instead it highlights entire portions of text. Sometimes I click and instead of the wrong thing...
At night, when I’m lying in bed, tired and still, my body becomes a playground for my misfiring nerves. Starting at the base of my spine and radiating down both legs, I experience unsettling electrical sensations that make me want to kick and stretch and move around and think about that restless leg commercial I used to see at 3 a.m. back in my pre-mama days. And ever since I had a tonic spasm on the entire left side of my body in 2003, being tired also means subtle but consistent jolts of electricity...
A few days ago I was at Wal-Mart picking up a prescription for my daughter. I was waiting in line and overheard the woman in front of me asking the pharmacist about alternatives to regular milk. She said she had been having some digestive problems and she heard that it could be the dairy and that she should try a dairy-free diet. I usually keep to myself in public, but the pharmacist didn’t seem to know much beyond soy milk, which is a known endocrine disruptor (and causes flatulence!). So I felt compelled to...
I’m delirious. I went to sleep at 3 a.m. and was rudely awoken by my alarm at 6 a.m. Today was the second day of first grade for my daughter, after a long summer of late nights and sleeping in, and my body is not adjusting easily to this new schedule. When I got home from the bus stop, my bed beckoned me (come back, Karen…sleep my lovely…) but I resisted, instead taking the advice of a friend who suggested it’s better to suffer for one day in order to fall asleep at a...
A couple days ago, I received an email from a woman who had just been diagnosed with multiple sclerosis. She had seen two neurologists and both declared with extreme urgency that she needed to begin treatment with one of the Disease Modifying Therapies (DMTs) immediately. She doesn’t want to take a pharmaceutical drug and believes in alternative treatments. But she’s devastated, worried, confused, and unsure what to do and she wrote me to ask my perspective. This scenario happens every day, all throughout the country and the world. People are being diagnosed with MS...
I received an important question in response to my post the other day. Pam wants to know: “If you tell yourself that you are healed, and then you continue to experience symptoms when you try to go about doing things that you want to do and you used to do, how do you keep up the positive thoughts when your body is telling you otherwise?” Let me begin by saying that telling yourself you’re already healed and thinking positive thoughts will not get you where you want to go. You need to be able...
Stress. The perfect precursor to a relapse. If you are living with MS, then you have likely had the experience of a stressful situation leading to the onset of symptoms, or at worst, a full-on flare-up. Any neurologist will tell you that stress lands patients in his exam room every day. But the fact is we live in the world, not on a mountaintop, and it’s a modern, chaotic, fast-paced, unpredictable, ever-changing world at that. So how do you manage your stress so that you can stay healthy and symptom-free? Well let’s start by...
